Welcome to the Autoimmune Vasculitis Caregivers Group companion blog

What sets this group apart is our connection to a patient with a diagnosis of an autoimmune related form of vasculitis.

Put simply, the fifteen differential diagnoses listed on the Vasculitis Foundation list of vasculitides:

• Behcet's Disease
• Buerger’s Disease
• Central Nervous System
• Churg Strauss Syndrome
• Cryoglobulinemia
• Giant Cell Arteritis
• Henoch-Schönlein Purpura
• Hypersensitivity Vasculitis
• Kawasaki Disease
• Microscopic Polyangiitis
• Polyarteritis Nodosa
• Polymyalgia Rheumatica
• Rheumatoid Vasculitis
• Takayasu’s Arteritis
• Wegener’s Granulomatosis

That list of conditions is not exclusive, and at some point other conditions may join us. But for now that is who is invited to participate here.

The idea is to share ideas and solutions, to provide and gain support, to join together in ways that are not possible when we are spread all over the globe.

Caregivers have unique issues that are often share with the patient, but not always. And we do not always see things the same way as patients will. Just by virtue of the fact that we do not have the condition ourselves, we are set apart and this online community is the place for us to discuss those similarities and differences so that we can grow together, even as we live apart.

It is yet another extension of the primary message of the Vasculitis Foundation, which is this, "You Are Not Alone."

I welcome you to participate actively in the mailing list, and to visit this blog from time to time to read what we hope will be helpful information for caregivers.

Thank you and see you in the list!

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Joseph Carpenter

Parent, daughter with CSS (DX March '08)

New Mexico Chapter Leader

Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact

Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org

Vasculitis Foundation - http://www.vasculitisfoundation.org